Weekly Spotlight - 14.11.24

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In the News

Amgen Partners with National Scleroderma Foundation for GivingTuesday Match

The National Scleroderma Foundation partners with Amgen Rare Disease for GivingTuesday, matching donations up to £25,000. This collaboration supports research, education, and community aid. GivingTuesday, on 3 December 2024, encourages global generosity. Contributions will be doubled, enhancing efforts to combat scleroderma. Join us in this impactful initiative.

Gastrointestinal Symptoms in SSc Affect Quality of Life and Employment

Gastrointestinal symptoms in systemic sclerosis (SSc) patients significantly affect quality of life, physical function, and mental health, but not mortality. Severe symptoms lead to higher unemployment and emotional distress. Despite challenges, understanding these impacts can guide better support and care, fostering hope and resilience in affected individuals.

Men's Online Support Group for Scleroderma: Join Us Now!

Lung Foundation Australia and Scleroderma Australia offer an online support group for men affected by scleroderma. This community provides a judgement-free space to share experiences, resources, and encouragement. Meetings occur monthly, and membership is open to all, regardless of lung involvement. Join via the QR code on the flyer.

Scleroderma Diagnosis: A Journey of Resilience and Hope

Tomisa Starr shares her 30-year journey with scleroderma, highlighting the challenges of diagnosis and treatment. Despite initial misdiagnoses, she eventually found care at Stanford University. Her story, filled with personal anecdotes, aims to bring awareness and support to others facing similar struggles with this rare disease.